On May,8 it is observed as World Thalassemia Day. This day is celebrated in order to create awareness about the disease and telling how to prevent it.
Let’s Know About Thalassemia
It is an inherited blood disease. Thalassemia is associated with the abnormal production of haemoglobin. Haemoglobin is the essential constituent of RBC’s which carries oxygen and provides iron to the body. It is of two types Alpha Thalassemia and Beta Thalassemia. It is a genetic disorders that means it is inherited from parents to child. Severity of the disease depends upon how much genes are defected in globin chains.
- Pale Skin
- Spleen gets enlarged
- Dark colored urine
- Severe anemia
World Thalassemia Day had it’s objectives in dealing with the treatment and earlier detection of Thalassemia as it is not detected easily by seeing the symptoms. A proper test of Thalassemia could only bring light to the disease. Otherwise A person who is the carrier can live the normal life with functioning of organs, but can produce thalassemic children. It is state called Thalassemia Minor where you do not show any symptoms but you will be the carrier.
In a report, it has been stated that India is having the worst scenario in Thalassemia. It has around 4 crore carriers of the disease and 1 Lakh people facing disease. Average age is 20 when majority of people suffering from the disease dies in India as there is no proper treatment facilities or lack of access to treatment.
Reshma Roshan who is an haemotologist in Pune said “Thalassemia is an inherited condition which is carried in the genes and passed on from parents to children. One of the major types of thalassemia, Beta thalassemia, happens when the gene that controls the production of a protein called beta globin becomes defective. The rising number of thalassemic children is posing a threat on the public health of our country,”
There are complicated treatments for Thalassemia. Regular blood transfusions are the common treatment people undergoes. It creates further problem that iron levels gets abnormally high. Iron chelation is another method. For the rich and wealthy people the permanent treatment is bone marrow transplantation but again everybody cannot afford to take the load of bone marrow transplantation.
- India needs to be more planned to fight and prevent disease. Unplanned marriages, pregnancy leading to thalassemia and premature death of children is damaging the future of India. Carrier persons should avoid marrying carrier partner.